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General Category => General Discussion => Topic started by: Rough Edge racing on September 11, 2019, 04:00:37 PM

Title: More Cancer, acid reflux
Post by: Rough Edge racing on September 11, 2019, 04:00:37 PM
 I was recently  diagnosed with stage 2 to 3 Esophageal cancer.. The docs say it's directly related to years of acid reflux...I thought I had it under control for the last 15 years, well not so much...If you have a history of acid reflux get it cheked out by an endoscope procedure...
   This cancer is nasty and quite lethal.. I am 72 and have no other health problems , the docs tell me I got about 65% chance for 5 years...But the University of Rochester NY Medical center where I'm being treated has a new treatment that's very promising. They talk of a possible cure...I start chemo tomorrow, a drug pump in a fanny pack I wear for several days ..then a nurse comes to my house and takes it off...I repeat this three times over 6 weeks..Then a few week pause ,a scan, then 5 weeks ,5 days a week radiation and chemo once a week...Then  another pause , more scans, then is all is good, surgery to remove the fried esophaugus, reconnect and a feeding tube for a few weeks while I heal.....Then supposedly back to somewhat normal.....
  I'm not worried so much about dying but I hate all the medical procedures......My wife has got my back and just pushes me.....
  Just want to say the doctors, nurses, and staff at the U of R Medial have been outstanding.
  Thanks for listening, Tony
Title: Re: More Cancer, acid reflux
Post by: Groover on September 11, 2019, 04:19:10 PM
Best wishes Tony. Sounds like you are in good hands. Thank you for passing along the message.
Title: Re: More Cancer, acid reflux
Post by: bad Chad on September 11, 2019, 04:19:30 PM
Pulling for you!
Title: Re: More Cancer, acid reflux
Post by: dxhall on September 11, 2019, 04:47:26 PM
I just finished five weeks of daily radiation, with six more months of hormone therapy.  I kept thinking, “one day at a time.”  Hang in there, Tony. 
Title: Re: More Cancer, acid reflux
Post by: oldbike54 on September 11, 2019, 04:57:09 PM
 Good doctors are always a good choice . Hang in Tony , we are in fact pulling for you .

 Dusty
Title: Re: More Cancer, acid reflux
Post by: john fish on September 11, 2019, 05:00:29 PM
Good luck, Tony! 
Title: Re: More Cancer, acid reflux
Post by: Gliderjohn on September 11, 2019, 05:08:43 PM
Best of luck, kick it's butt out of you.
GliderJohn
Title: Re: More Cancer, acid reflux
Post by: Texas Turnip on September 11, 2019, 05:10:12 PM
Tony,
For me, the radiation wasn't a picnic. I wish you well.

Tex
Title: Re: More Cancer, acid reflux
Post by: twodogs on September 11, 2019, 07:17:54 PM
Wow prayers and best wishes to you also.
Title: Re: More Cancer, acid reflux
Post by: wrbix on September 11, 2019, 07:28:04 PM
One of my worst fears...I’ve been diagnosed with Barrett’s esophagus, a premalignant condition also related to reflux...now on an every two year endoscopic monitoring though the Mayo....prompted my abstinence also from cigars and hard liquor, both of which exacerbate my symptoms.

Would encourage anyone with reflux symptoms to have EGD and biopsy performed proactively.
Title: Re: More Cancer, acid reflux
Post by: Knuckle Dragger on September 11, 2019, 07:53:13 PM
Best of luck.  My thoughts are with you.
Title: Re: More Cancer, acid reflux
Post by: John A on September 11, 2019, 08:18:12 PM
I hate all that medical crap as well but ya got to give yourself the benefit. Hope it turns out well,
Title: Re: More Cancer, acid reflux
Post by: jrt on September 11, 2019, 10:01:36 PM
Best of luck to you. If the fanny pack is fluorouricil (5-F-U), then be really cautious about going out into the sun.  You'll have a tendency to syncopy (pass out). 
Also, you won't be the same after treatment, but I hope you will be upright and in good shape.  Treatment won't be fun and there will be damage.  Our most modern methods of healthcare are not sophisticated enough to target only cancerous tissues.  I'm not trying to be a downer- and I hope you are fine.
Your wife is your strongest advocate- listen to her!  And again- good luck!
Title: Re: More Cancer, acid reflux
Post by: Ryan on September 12, 2019, 12:03:28 AM
You have a plan. You have a team. Execute the plan and you are good to go. Pulling for you.
Title: Re: More Cancer, acid reflux
Post by: Zoom Zoom on September 12, 2019, 04:53:59 AM
I hope it works out well for you Tony.

John Henry
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on September 12, 2019, 05:25:39 AM
One of my worst fears...I’ve been diagnosed with Barrett’s esophagus, a premalignant condition also related to reflux...now on an every two year endoscopic monitoring though the Mayo....prompted my abstinence also from cigars and hard liquor, both of which exacerbate my symptoms.

Would encourage anyone with reflux symptoms to have EGD and biopsy performed proactively.

  Good advice...Yes, Tobacco, alcohol and obesity are factors. It's a somewhat rare cancer in the USA...... Endoscope procedure is not unpleasant......I'm thin, gave up tobacco years ago and drink about three beers a month. :huh:.
  The tests were interesting, inject a radioactive sugar solution into my veins, drink a radioactive mixture and spend 25 minutes getting CT and PET scans from my head to my knees... My body is clean except for the esophagus  area around the tumor and slightly into a few surrounding lympth nodes. The doctors said that from their experience this is very treatable..Their optomisitic attitude is both enlightning and scary, like they are just telling me that...The oncology doctors are very personal, we sit close, talk for 1/2 hour and never break eye contact..I mentioned that  my insurance, AARP United Health Medicare has a limit on the number of PET scans...The doctor said no insurance company will limit his care for a patient, we will work it out....But I do have fairly decent coverage and can afford to pay the out of pocket costs.
  Thanks for listening, thanks for the good thoughts, I have said more than enough...
Title: Re: More Cancer, acid reflux
Post by: TommyR on September 12, 2019, 06:35:24 AM
I get a lot of acid reflux. I`m a pretty healthy eater but it seems many things give me bloated indigestion, reflux, burping. My doctor is a holistic guy who will not write pharma prescriptions. He told me to go start using a digestive enzyme called Metagest from a company called Spectrazyme Metagenics. You can get it on Amazon. I take 2 to 3 of these enzyme tablets after any main meal and hey presto, I digest very well, I no longer get reflux and I feel really good. This doctor told me the real reason I get so much bloating and reflux is that the little pumps in my stomach which make digestive acid are weak, plus I`m probably eating foods to which I react. He also said that the very worst thing one can take is a stomach acid inhibitor called a PPI [Tagamet is an example, so is Prilosec]. These kill off your stomachs ability to digest certain essential minerals and vitamins, and they will eventually make your esophagus issues much worse. If anyone is suffering poor digestion and reflux, I`d do two things. 1. Try out the Metagest enzyme [they are benign and you have nothing to lose]. 2. Get a good quality food allergy panel test done and eliminate anything to which you are reactive.  Good luck....!!
Title: Re: More Cancer, acid reflux
Post by: rdbandkab on September 12, 2019, 07:07:30 AM
Thoughts and prayers are with you Tony.
Title: Re: More Cancer, acid reflux
Post by: bobrebos on September 12, 2019, 07:12:14 AM
Tony:  My brothers been clear of cancer (Esophageal) for 6 years now.  Im hoping the best outcome possible for you.  Best wishes to you!!   
Title: Re: More Cancer, acid reflux
Post by: Duc-Duc-Goose on September 12, 2019, 08:45:00 AM
Good luck, Tony :thumb:. It’s a hard road, but doable. I was diagnosed with squamous cell carcinoma of the throat in 1997. They said I had about a 30% chance of survival to two years (a very aggressive type). I had 39 radiation treatments (7000 rads). No chemo, as the docs said for my situation it probably wouldn’t improve efficacy/outcome, and wouldn’t be worth the discomfort/side effects. Also, had radical neck dissection two days after the radiation regimen. I thought I might not survive the treatments (radiation is rough and leaves permanent side effects), but like you, I had/have a good support system. Bottom line, I did make it, albeit with some “issues” that I’ll live with til I die. But, 22 yrs later I’m here to tell you - you CAN do this! I still ride my bikes, take long trips, play guitar in two bands and hang with my grand kids :grin:. Day at a time, and keep the weight on best you can. Godspeed.
Title: Re: More Cancer, acid reflux
Post by: jcctx on September 12, 2019, 10:48:49 AM
Best wishes and hope all works out for you!!
Title: Re: More Cancer, acid reflux
Post by: mjhinno on September 12, 2019, 12:12:41 PM
Hey Tony-new guy here.
Reading your post keeps a lot of other stuff in perspective-I've been whining like crazy deciding what I'll buy. Kinda foolish.
However--------
I've dealt with my own cancer issues for several years-won't burden you with the details. What I CAN pass onto you is the following:
1. Do as much research as you can but it's crucial to remember: The majority of people writing/commenting/advising (here or on medical forums) are doing so because they've had difficulties. The happy and successful ones are off enjoying motorcycles or living, not pounding on keyboards. Don't let the high % of nightmare scenarios scare you cuase theres no balance
2. Do your research, talk to everyone who has input that you value, decide who, where and what, and then rip off your rear view mirror. Don't look back, don't second guess, and don't spend a second worrying about anything that you can't change. You'be a lot happier and less stressed.
Good luck new friend
Title: Re: More Cancer, acid reflux
Post by: Gian4 on September 12, 2019, 12:20:30 PM
Good luck Tony.  We're all pulling for you. :thumb:
Title: Re: More Cancer, acid reflux
Post by: Ncdan on September 12, 2019, 06:25:40 PM
🙏🙏🙏👍
Title: Re: More Cancer, acid reflux
Post by: Muzz on September 12, 2019, 08:54:16 PM
You have a plan. You have a team. Execute the plan and you are good to go. Pulling for you.

Well said.  All the best Tony.
Title: Re: More Cancer, acid reflux
Post by: greer on September 13, 2019, 05:00:55 AM
Hoping for the best, Tony.  And thank you for the head's up and warning to the rest of us, acid reflux seems all too common these days.

Sarah
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on September 13, 2019, 08:33:25 AM
Hoping for the best, Tony.  And thank you for the head's up and warning to the rest of us, acid reflux seems all too common these days.

Sarah
  Yes..

  Yesterday was the first chemo treatment...I volunteered for a trial program using a drug normally  for lower intenstine tumors as a "shock" to the esophagus tumor before the usual chemo and radiation. U of R  Medical is not afraid to use different drug combos that they feel will work..A few side effects but nothing bad as of yet....I also have the prescribed anti nausea pills...I have on the carry around chemo pump for two days...One side effect is insomnia and I got that...The side effects may worsen in a few days..Then another two weeks before more of this..
  It was a long day and the 45 minute ride back to the sticks through city traffic is no fun...I got some quality home grown marijuana from a friend to help with the side effects, NY is a medical weed state but it's a pain to get it...We were exhausted...I found and old hippy pipe, cleaned it and slowly smoked some...I gave me an appetite and a bit of a high...We relaxed and watched old Stargate Atlantis shows with the ROKU...
Title: Re: More Cancer, acid reflux
Post by: PeteS on September 13, 2019, 09:04:09 AM
Rough, if you have to deal with this at least you are being treated by the best found anywhere. These guys go to talks every week to learn about the latest treatments plus many are working on coming up with new therapies themselves. I worked in that building for 30 years. Some pretty impressive folks there. Wishing you the best buddy.

Pete
Title: Re: More Cancer, acid reflux
Post by: MotoChuck250 on September 13, 2019, 09:58:47 PM
Rough,
In December of 2015 I was where you are now.  I spent about 6 weeks going through Chemo, and Radiation and then waited to May when they did an Esophajectomy on me.  I was 61 at the time.

It took me a while to get back to normal and I still don't have the stamina that I used to.  I have been cancer free for more than three years now.  The disease is survivable.

The advise I would give is to get all the exercise you can during treatment, including before and after surgery, and have your support group in place.

My oncologist said that my commitment to exercise during the ordeal, significantly helped my recovery.  My church and some good friends also helped quite a bit.

I will keep you in my thoughts and prayers.
Title: Re: More Cancer, acid reflux
Post by: Kev m on September 13, 2019, 10:09:19 PM
To be honest. I didn't want to reply to this for a while. It's a me thing...

I...uh... Want to wish you best.

I'll leave it at that for now.


Hang in there.
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on September 14, 2019, 10:26:46 AM
 Kev, it's ok, I just posted this primarily to make others aware of it.....But I'm still talking and do appreciate the well wishes......I have told only two closest friends and  several family...I like to keep it low key ...My wife is constantly with me at home or in the hospital, my pain is her pain..I bought a graphic art shirt with a lone warrior armed with a sword up against a fierce fire breathing dragon, aka the tumor...It's how I see it, a personal struggle...

       (https://images-na.ssl-images-amazon.com/images/I/719qWbUrrXL._UX679_.jpg)
Title: Re: More Cancer, acid reflux
Post by: rocker59 on September 14, 2019, 10:42:41 AM

Tony, I wish you the best.  Keep up the fight.

A great-aunt of mine passed from this cancer 35 years ago.  I fear that I'm going to have to deal with it at some point, when the Prilosec OTC isn't enough to keep the acid reflux at bay.

Title: Re: More Cancer, acid reflux
Post by: 80CX100 on September 15, 2019, 02:19:21 AM
Tony,    Sorry to hear this news, thank you for having the courage to share, keeps me mindful.

      Glad that you've got great medical care in your corner, and that you were able to line up some med pot to take the rough edge off the treatments.

      I have a couple of inspirational T shirts that I wear when needed; I love yours.

      Thoughts and healing energy from the 49th parallel.

       Kelly
Title: Re: More Cancer, acid reflux
Post by: Petrus Rocks on September 15, 2019, 11:11:42 AM
Tony's a tough old bird  :thumb:.  He's got a real good attitude and his medical team is one of the best in the US.  Hopefully I can get him out on his bike a little   :bike-037:
Title: Re: More Cancer, acid reflux
Post by: Gusable on September 15, 2019, 12:42:10 PM
GOD bless you and may you heal 100% to the glory of the almighty 🙏🙏🙏
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on September 15, 2019, 12:56:32 PM
Tony's a tough old bird  :thumb:.  He's got a real good attitude and his medical team is one of the best in the US.  Hopefully I can get him out on his bike a little   :bike-037:

 I shoulld be ok to ride by Wednesday or Thursday...Right now I'm a bit dizzy and walking in circles from the treatments...Yes, more dizzy than usual... :grin:
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on December 03, 2019, 05:37:52 AM
 An up date on my situation..I'm in a trial program due to my age, and good health other than cancer..11 weeks of chemo and yesterday was my last infusion...This week is also the last of 5 weeks of radiation, 5 day a week on a two million dollar  Linear Accelerater...I feel like I was thrown under the bus and dragged for a few miles...But I still work on my bikes a bit and the last few day in and unheated garge in 20F working on our damn 02 Honda CRV...I also take naps...My esophagus is burned from the radiation so eating is a bit tough as the food creates a burning sensation on it's way past . But life goes on...
  Early January I get a PET scan..The Docs are optomistic...If it shows I'm clean of cancer, then on to a 9 hours surgury to rebuild my food tube from stomach tissue....
 My care at the University of Rochester NY medial center is still first rate....My wife is my co pilot....There is hope...
Title: Re: More Cancer, acid reflux
Post by: Stevex on December 03, 2019, 05:56:53 AM
Best of luck mate, hope you kick the dragon's ass  :wink:
Title: Re: More Cancer, acid reflux
Post by: greer on December 03, 2019, 06:20:36 AM
Thank you for the update, Tony.  Hoping for the best.

Sarah
Title: Re: More Cancer, acid reflux
Post by: Kev m on December 03, 2019, 06:32:10 AM
Sounds more positive than not. Hang in there you tough old bastid!
Title: Re: More Cancer, acid reflux
Post by: pat80flh on December 03, 2019, 06:49:42 AM
    How much weed can you get? You may want to consider making oil, research Rick Simpson oil. It is much more effective taken internally, good for chemo side effects, some claim it'll cure cancer but I don't know. A pound will yield you 50-60 grams of oil, most recommend 60-90 days of a gram a day. NY medical marijuana is exorbitantly expensive, and who knows what the govt does to it. 
    I'm 20 or so miles from you, 62, retired, would be glad to help whip up a batch of oil, it's way easy,  or anything else you need. I have dealt with prostate cancer for the last 12 years, I know the experience.......
    All the best
Title: Re: More Cancer, acid reflux
Post by: SIR REAL ED on December 03, 2019, 07:00:07 AM
Rough Edge Racing,

Wishing you the best.  Great support group.

All the posts here make me feel a hip replacement is a walk in the park and that I have been very fortunate to have good health to date.

As someone who grew up in Monroe County, NY, look on the bright side, the weather will be so bad up there for the next few months that you won't miss out on much riding.  Hopefully, in the spring, you'll be good as new.
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on December 03, 2019, 07:25:43 AM
    How much weed can you get? You may want to consider making oil, research Rick Simpson oil. It is much more effective taken internally, good for chemo side effects, some claim it'll cure cancer but I don't know. A pound will yield you 50-60 grams of oil, most recommend 60-90 days of a gram a day. NY medical marijuana is exorbitantly expensive, and who knows what the govt does to it. 
    I'm 20 or so miles from you, 62, retired, would be glad to help whip up a batch of oil, it's way easy,  or anything else you need. I have dealt with prostate cancer for the last 12 years, I know the experience.......
    All the best

 I have some smoking weed from a freind who grows indoors...I use it moderately for side effects..It does help some especialy with appetite since I have temporarily lost a lot of sense of taste. And it helps as a distraction....
  Weed to cure cancer?Thats a tough call... Tell me about the ratio of cures compared to those that died....Conventiona l medicine Chemo and radiation have proven facts from years of use, good and bad....The oncologists working with me are very serious about their work and spend all their time doing research and are in constant contact with researchers and drug manufacturers all over the world. Stage 3 esopagus cancer is very lethal and up to 10 years ago had a 5 year survival rate of maybe 15%.U of R medical not not really publish survival rates but now with new treatments it's closer to 60%.The trial progam for me uses Folfox ,a blend of many drugs normally used for intestional cancer.The result so far have been promising.. This is not to say that some find a cure or remission with Cannibus but I have my money on the treatment I'm getting......
  That being said,I am not closed mnded, if you can get me a small amout of oil I would be willing to try it , thanks for the offer...
Title: Re: More Cancer, acid reflux
Post by: SIR REAL ED on December 03, 2019, 07:34:45 AM
We have subscribed to Dr. William's newsletter for at least 12 years now.  Here is some interesting information on cancer from a recent issue:


http://fenbendazole.s3.amazonaws.com/A-Cure-for-Cancer-Hidden-in-Plain-Sight-July-2019-Dr-David-Williams.pdf

Title: Re: More Cancer, acid reflux
Post by: Dilliw on December 03, 2019, 07:38:54 AM
Thank you for this and best wishes Tony.  Sounds like you have the proper support crew as well.

Just FYI I'm scheduled for the two-way scope thing tomorrow.  The DR promised me he'd do the top end first...

Title: Re: More Cancer, acid reflux
Post by: Ncdan on December 03, 2019, 07:56:36 AM
🙏🙏🙏coming your way Tony. (Romans 8:28)
Title: Re: More Cancer, acid reflux
Post by: chuck peterson on December 03, 2019, 09:41:41 AM
Try inexpensive leaf, not buds,... in butter, or foods...more intestinal, less lung.

not that I would know anything about these things... :popcorn:

But do your thing, everyone else is taken..peace
Title: Re: More Cancer, acid reflux
Post by: wicks on December 03, 2019, 11:25:25 AM
Thanks for sharing the specific treatment information - and hope it is working well and killing off your dragon.

I always read up on the latest treatments as this same thing took out my dad 8 yrs ago at 63. He was a bit too beatnik and waited too long to agree to chemo and radiation while trying silly stuff offered by his scientologist friends, so his opponent was able to grow too strong. He did get a remission after we flew him to germany for radical chemo and was back on his mountain bike for one summer.

Will be following, thanks again for sharing (and all the other info people are sharing).
Title: Re: More Cancer, acid reflux
Post by: Muzz on December 03, 2019, 01:56:46 PM
Thanks for the update Tony.  Here's to a successful outcome :thumb: :thumb: :thumb:.

It was after reading your first post that I started taking a bit more interest in the odd bit of reflux I was getting.  Spoke to my Doc and he has been excellent in coming up with control methods.  He too was emphatic; just leave it and you can almost guarantee to have problems.  Thanks for your timely warning to all of us.
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on December 03, 2019, 01:58:18 PM
 The oncolgists are aware of alternate treatments, they are aware of the dog wormer....They also have had a patient or two beyond medical help who was given months to live and just like that the cancer went into remission and the person lived another 10 years...Given my situation, I go with the treatment I'm getting unless it does not work....I talk to the oncolgists about why they chose this line of work and other professional details..I believe in them.....
Title: Re: More Cancer, acid reflux
Post by: Sheepdog on December 03, 2019, 02:29:15 PM
Sending my best to you, Tony. Peace and comfort...
Title: Re: More Cancer, acid reflux
Post by: pete mcgee on December 03, 2019, 02:49:08 PM
Tony,
One day at a time mate, one day at a time.
Youve no doubt had the "everyone is different" speil from the doctors and they are correct.
Stay positive and as hard as it can be at the height of your treatment make plans for the future.
This is a long period of treatment and recovery, its not easy as has been mentioned.
Stay positive.
I wish you the best.
Title: Re: More Cancer, acid reflux
Post by: Penderic on December 03, 2019, 03:40:09 PM
Sorry to hear about your health troubles. Regarding Acid Reflux, I had Acid Reflux really bad and getting worse. Waking up in middle of night and I would have to take a hand full of Tums, just to help get rid of the strong burning acid in my upper throat. Burping at night can kill you!

I heard that fasting (water is ok) stopped the stomach acid production, right up till you started eating again.

I Learned that a fast also cured type 2 diabetes, until you started eating again.

And by a web search accident, I discovered, there was a minimalist diet out there, called the Carnivore Diet, that reduced food intake to a minimum yet provided all the nutrients needed. Beef, water, salt as the base line! No fooling eh. I my time and checked it out. Testimonies on improving health, particularly the digestive system, abound on the web and increasing, since I last checked.

The second day for me on a "30 Day Carnivore Challenge" I noticed my  Reflux was completely gone - hurrah! had the best sleep in years. Lots of other little improvements noticed as well. No more bloating, sugar swings, better skin, more resistance to cold, no more hunger pains, rumbles and all my food cravings fade away - I don't feel hungry at all. I feel great.

Blood tests = normal and I am still on the diet (mostly) after a year and half - just adding a small amount of cooked veggies a couple times a week, for the indigestible fiber sometimes required to keep this guys bowel movements,  :azn: completely happy.

Just my Opinion .... Might help some others here.
(https://i1299.photobucket.com/albums/ag77/Penderic/Penderic008/Happy%20eat%20lard_zpsrytvblcu.jpeg)



 
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on December 03, 2019, 04:21:48 PM
 I may have said this previously......Abo ut 20 years ago we changed out diet to something considered healthier and my acid reflux was not a problem after that Ww also exercized  days a week for 1/2 hour..We were not fat but felt we were doing the right thing for the future...The surgeon remarked the damage was done to start mutant cells...And even then only a small percentage of those with reflux go into cancer...So I said to her" this is my reward for trying to be healthy?" She laughed and said maybe...And cancer can strike for no reason at all..It's a sneaky disease that can change form and avoid predator anti bodies...That's why I get chemo the same time as the radiation...The radiation kills the tumor(s) and any cancer cells trying to escape is killed by the chemo...This is not always done at other medical centers.
  Day to day I don't not have anxiety from this, my life is in the care of others and I'm just going along for the ride......Thanks for the well wishes, I believe there's power in ....
Title: Re: More Cancer, acid reflux
Post by: Griso8V on December 03, 2019, 05:34:34 PM
Good luck and keep fighting!  Hoping and praying that you will beat it...
Take care
Title: Re: More Cancer, acid reflux
Post by: Mr Pootle on December 04, 2019, 10:23:53 AM
 Keep on keeping on, RER. We 72 year olds have plenty to do yet.
I'm following you. I go on Friday to have a feeding tube inserted, in readiness for radiotherapy. They were going to slice my tongue cancer out last week, but when they anaesthetised me and jacked my mouth open they found it went too far down my throat for them to be able to get to it all.
Fortunately, I'll not be far enough into the radiotherapy to restrict my Christmas celebrations, though New Year's Eve may be affected.
Title: Re: More Cancer, acid reflux
Post by: jksymz75 on December 04, 2019, 10:51:51 AM
I, too, have acid reflux for years so I appreciate the heads up. Best luck to you that you beat this thing.
Title: Re: More Cancer, acid reflux
Post by: Mr Pootle on December 04, 2019, 11:38:22 AM
It's HPV that caused my problem. I either kissed the wrong woman, or the wrong part of the right woman.
Title: Re: More Cancer, acid reflux
Post by: TN Mark on December 04, 2019, 12:12:15 PM
This is an amazing thread filled with wonderful information and testimonials. My prayers are inbound for you Tony.
Title: Re: More Cancer, acid reflux
Post by: guzzifan on December 04, 2019, 01:01:43 PM
Keep the faith Tony.  It sounds like you have this in perspective, have a partner prepared to help, and are getting the latest thing in treatment...an excellent place to start.  Your pragmatic approach to life is to your credit, and, while I have never met you, I get a strong sense you are going to be fine. 

Thank you for reaching out. In a world seemingly going mad as of late I appreciate the trust and openness you've demonstrated by sharing.  I won't pressure you for any updates, but my thoughts are with you.
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on January 09, 2020, 03:50:31 PM
 It's been about a month since I finished chemo and radiation...I got a PET scan and two CT scans a few days ago ,it was from my thighs to my head...I met with the oncologists today to go over the results....No new cancer cells, no spread, the tumors have noticably shrunk and appear inactive...The docs were all smiles..In a month I go in for a 9 hour surgical procedure to remove all the dead tumors and rebuild my esophagus...They will examine all the removed tissue for any active cancer cells unseen my the scans.. If anything is found I may have a few more rounds of chemo...This cancer has a high rate of come back so they want to be sure...
  The chemo and radiation at the same time was brutal...A week after it was finished I was barely able to function.. I just laid on the sofa for a week ,mostly sleeping..Now I feel ok, about 50% normal strength..My hair is thinner but growing back. I an eat most anything...No matter what, I'll be looking over my shoulder for the next few years but I have been given another chance at life..
 
Title: Re: More Cancer, acid reflux
Post by: Lannis on January 09, 2020, 03:55:34 PM
It's been about a month since I finished chemo and radiation...I got a PET scan and two CT scans a few days ago ,it was from my thighs to my head...I met with the oncologists today to go over the results....No new cancer cells, no spread, the tumors have noticably shrunk and appear inactive...The docs were all smiles..In a month I go in for a 9 hour surgical procedure to remove all the dead tumors and rebuild my esophagus...They will examine all the removed tissue for any active cancer cells unseen my the scans.. If anything is found I may have a few more rounds of chemo...This cancer has a high rate of come back so they want to be sure...
  The chemo and radiation at the same time was brutal...A week after it was finished I was barely able to function.. I just laid on the sofa for a week ,mostly sleeping..Now I feel ok, about 50% normal strength..My hair is thinner but growing back. I an eat most anything...No matter what, I'll be looking over my shoulder for the next few years but I have been given another chance at life..
 

Wow, there's a lot of good news in there!   Glad you've gotten through this part of it.   

Sleep all day on the sofa?   Eat anything you want?   Take advantage of that while you can!!    :thumb:   :thumb:

Lannis
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on January 09, 2020, 04:21:22 PM
 My brain is still recovering...I'm sure you noticed my posts the last few months were more absurd than usual.. :wink: :grin:  I can east most anything but my sense of taste is somewhat numb...
Title: Re: More Cancer, acid reflux
Post by: john fish on January 09, 2020, 05:21:37 PM
Man, that's rough.  You have a great attitude for what you're going through.  Good luck.
Title: Re: More Cancer, acid reflux
Post by: PeteS on January 09, 2020, 05:24:20 PM
Great news Rough. Did they recommend any food to take or avoid? Might be good to avoid sugers and carbs. Cancer cells use them faster than normal cells. Starve those suckers.

Pete
Title: Re: More Cancer, acid reflux
Post by: Markcarovilli on January 09, 2020, 05:24:45 PM
Great news and hope you keep feeling better.  Now go eat something cause you can...

Mark
Title: Re: More Cancer, acid reflux
Post by: Ncdan on January 09, 2020, 05:40:11 PM
Will still have you in my 🙏
Title: Re: More Cancer, acid reflux
Post by: Rinkydink on January 09, 2020, 10:14:53 PM
My father in-law had the exact same diagnosis. He lived 12 years. His demise wasn’t due to cancer but genetic heart problems. Do what the docs say and God bless.
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on January 10, 2020, 05:24:07 AM
Great news Rough. Did they recommend any food to take or avoid? Might be good to avoid sugers and carbs. Cancer cells use them faster than normal cells. Starve those suckers.

Pete

 I was told the sugar/cancer theory is not true..It's internet gossip started from the fact that PET scans use a radioactive sugar solution injected into the bloodstream to highlight active cancer.There are other opions of course, but MD Anderson and the Mayo clinic agree with the U of R Medical on the sugar. ..It's got to do with the way the cells uptake sugar..But.What is true is that excessive sugar can lead to diabetes or obesity that increses the risk of cancer.......I have always avoided sugar and high carb foods anyways...
Title: Re: More Cancer, acid reflux
Post by: greer on January 10, 2020, 05:28:40 AM
Good to hear from you, thanks for the update.  Hope you'll gain strength each day, and back to yourself by Spring. 

Sarah
Title: Re: More Cancer, acid reflux
Post by: SIR REAL ED on January 10, 2020, 05:40:01 AM
My brain is still recovering...I'm sure you noticed my posts the last few months were more absurd than usual.. :wink: :grin:  I can east most anything but my sense of taste is somewhat numb...

You are inferring that I or others here have discernment? 

Sometimes that numbness of taste just comes from hanging out with the wrong kind of people too much!

Wish you the best.  Stay tough and get stronger.  Keep up the great attitude.

https://www.amazon.com/Cant-Afford-Luxury-Negative-Thought/dp/0931580242

  :grin:

Rough Edge Racing,
Just curious, as one who grew up in Brockport, NY, and enjoyed trips to Roseland Park in Canandaigua NY, where is "north of the Finger Lakes?"
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on January 10, 2020, 06:11:48 AM

Rough Edge Racing,
Just curious, as one who grew up in Brockport, NY, and enjoyed trips to Roseland Park in Canandaigua NY, where is "north of the Finger Lakes?"
Marion NY...an agricultural town that  has the most antique pulling tractors per captia, LOL...
Title: Re: More Cancer, acid reflux
Post by: bobrebos on January 10, 2020, 06:31:45 AM
It's been about a month since I finished chemo and radiation...I got a PET scan and two CT scans a few days ago ,it was from my thighs to my head...I met with the oncologists today to go over the results....No new cancer cells, no spread, the tumors have noticably shrunk and appear inactive...The docs were all smiles..In a month I go in for a 9 hour surgical procedure to remove all the dead tumors and rebuild my esophagus...They will examine all the removed tissue for any active cancer cells unseen my the scans.. If anything is found I may have a few more rounds of chemo...This cancer has a high rate of come back so they want to be sure...
  The chemo and radiation at the same time was brutal...A week after it was finished I was barely able to function.. I just laid on the sofa for a week ,mostly sleeping..Now I feel ok, about 50% normal strength..My hair is thinner but growing back. I an eat most anything...No matter what, I'll be looking over my shoulder for the next few years but I have been given another chance at life..
 

Congratulations on the positive results.  As a bladder cancer survivor (Although I lost my bladder, gall bladder, prostate, and some lymph nodes) I can say any good news when it comes to cancer is GREAT.  Mine can come back at any time too, but we learn then to enjoy each and every day that is hasn't.  Best wishes to you. 
Title: Re: More Cancer, acid reflux
Post by: SIR REAL ED on January 10, 2020, 09:36:27 AM
Marion NY...an agricultural town that  has the most antique pulling tractors per captia, LOL...

As a card carrying Redneck, I know exactly where it is!   :grin:
Title: Re: More Cancer, acid reflux
Post by: John Croucher on January 10, 2020, 11:28:41 AM
I will throw this out there, parasites.  Call me delusional out of you own ignorance of the reported, but ignored epidemic in the U.S. per the CDC.  The testing procedure is less than 3% accurate when it is rarely used.  Many medical conditions are the results of parasites.  Cancer is caused by parasites.  Parasites are called cancer.

Why are parasites never diagnosed? Money.  Easy to treat and there is not money in health people. Albendazole or Mebendazole are the drugs of choice because they cross over to the blood and destroy parasites thru out the body.  These medicines are also a cancer treatment because they break down the mitochondria.

Justin Bieber has recently reported having Lymes Disease and other Viral infections.  I had the same issues.  A parasite in a tick carries the Lymes bacterial.  Treating the bacteria is easy. 6 months later, the parasite/parasites begin to multiply in the body creating the secondary illnesses that appear in those that have had Lymes disease.  When in reality the secondary illness is being cause by parasites, not Lymes. 

I was dying from the parasites.  Malnutrition, lost 40 pound, dysentery, symptoms of anorexia and dysexecutive function disorder. It took 25 years for me to reach the point near death. 

Compounding my parasite problem was the  fact that I was infested with several types.  Pin worm, tape worm, hook worm and others.  How does someone get such parasites?  Easy, just being alive.  Cats, dogs, turtles, fishing, swimming, camping, farming, eating fresh food, meat, traveling, cutting grass, bird dropping, pet dropping, sleeping with pets, kissing pets, rodents, life. 

How do you test for parasites?  Easy,  poop in a bowl, add hot water, stir with a wooden chopstick until dissolved, slowly pour out over a white paper plate and observe what appears to be a worms or egg masses with worms attached.  In a lab setting, a very small stool sample is smeared on a piece of glass and looked at under a micro scope.  Parasites can been seen with the naked eye.  You have seen them in the dog, cow, pig or cats poop in the litter box or back yard.  The same thing can be found in the human body.  Causing many illnesses that the Medical Community loves to bill you for.

Some of the many parasites that came out of my body.  I had a Veterinarian and Old Farmer friend tell me how to test and look for the parasites.  The Veterinarian straight up called it right after hearing me complain about being deathly ill and Doctors would just continue to pass out anti diarrhea medicine. 

Next time you or a family friend are told it is cancer, I would do a few weeks of Albendazole or Mebendazole before  taking drastic surgical or other dangerous medicines.  These medicines are passed out bi-annually around the world as a preventive treatment just like the flu shot is given in the U.S.  Follow the money.


(https://i.ibb.co/q1kbNXG/Parasite-1.jpg) (https://ibb.co/q1kbNXG)

(https://i.ibb.co/8mK7Gzv/Parasite-2.jpg) (https://ibb.co/8mK7Gzv)

(https://i.ibb.co/Nr4BXnp/Parasite-3.jpg) (https://ibb.co/Nr4BXnp)

(https://i.ibb.co/7b6s1LD/Parasite-4.jpg) (https://ibb.co/7b6s1LD)

(https://i.ibb.co/NVjLPdm/Parasite-5.jpg) (https://ibb.co/NVjLPdm)
 
Title: Re: More Cancer, acid reflux
Post by: 80CX100 on January 10, 2020, 12:40:39 PM
Rough, thanks for sharing that good news.

Sounds like a tough road; but glad to hear that you're in the game, fighting the good fight.

Sending healing comforting thoughts.

Tks my thoughts and respect your way

Kelly

ps John, tks for jumping in and sharing the info re parasites and a layman's game plan.

 As someone who has had experience with both pin worms & tics, it was a nice reminder to keep an open mind to the big picture. The human body is a complex miracle that we've got far to go to fully understand. tks
Title: Re: More Cancer, acid reflux
Post by: rocker59 on January 10, 2020, 02:35:17 PM
I will throw this out there, parasites.  Call me delusional out of you own ignorance of the reported, but ignored epidemic in the U.S. per the CDC.  The testing procedure is less than 3% accurate when it is rarely used.  Many medical conditions are the results of parasites.  Cancer is caused by parasites.  Parasites are called cancer.

Why are parasites never diagnosed? Money.  Easy to treat and there is not money in health people. Albendazole or Mebendazole are the drugs of choice because they cross over to the blood and destroy parasites thru out the body.  These medicines are also a cancer treatment because they break down the mitochondria.
 

John,

Cancer is not a parasite.  Cancer is abnormal cell growth.  One's own cells.

Parasites are organisms which depend upon another organism to live.

But you're right about something:  There is more money in treating people than in curing people.  Curing all the diseases in the world would put doctors and pharmaceuticals out of business.  So, they treat instead...

Title: Re: More Cancer, acid reflux
Post by: Vince in Milwaukee on January 10, 2020, 03:06:50 PM
Glad to hear that you are feeling better.  Sorry that you have to go through this.  Will be thinking about you here in Wisconsin.
Title: Re: More Cancer, acid reflux
Post by: Lannis on January 10, 2020, 03:22:55 PM
John,

But you're right about something:  There is more money in treating people than in curing people. 


So how do you convince smart people to come up with cures rather than treat people for diseases?   Or are you just stating a fact like "Everyone dies someday" or "People will always aim to perform to the standard to which they are measured, and not what's 'right'"?   :huh:

Lannis
Title: Re: More Cancer, acid reflux
Post by: kingoffleece on January 10, 2020, 03:35:07 PM
Wishing you all the best for 100% recovery.
Title: Re: More Cancer, acid reflux
Post by: SIR REAL ED on January 10, 2020, 04:05:53 PM
I will throw this out there, parasites.  Call me delusional out of you own ignorance of the reported, but ignored epidemic in the U.S. per the CDC.  The testing procedure is less than 3% accurate when it is rarely used.  Many medical conditions are the results of parasites.  Cancer is caused by parasites.  Parasites are called cancer.

Why are parasites never diagnosed? Money.  Easy to treat and there is not money in health people. Albendazole or Mebendazole are the drugs of choice because they cross over to the blood and destroy parasites thru out the body.  These medicines are also a cancer treatment because they break down the mitochondria.

................... ....

Very interesting information John.  Reminds me of this issue of Alternatives.

http://fenbendazole.s3.amazonaws.com/A-Cure-for-Cancer-Hidden-in-Plain-Sight-July-2019-Dr-David-Williams.pdf

Makes sense in medicine to try the simple things first, provided one has the time.

Title: Re: More Cancer, acid reflux
Post by: John Croucher on January 11, 2020, 09:53:52 AM
Very interesting information John.  Reminds me of this issue of Alternatives.

http://fenbendazole.s3.amazonaws.com/A-Cure-for-Cancer-Hidden-in-Plain-Sight-July-2019-Dr-David-Williams.pdf

Makes sense in medicine to try the simple things first, provided one has the time.

Thanks for sharing this.  I will save it in my archives.  I have done 100's of hours of research on parasites.  Cancer and the cure with Albendazole/Mebendazole kept coming up. 

Albendazole is a patent medicine in the U.S. and cost $275 per pill.  It can be purchased online for $17 for a box of 100 from outside the U.S. without a prescription. Mexico is a great place to shop for medicine.

I have had gene testing done after several rounds of Albendazole.  Testing came back that I have a less than 3% chance of developing cancer. 

I know that if I was diagnosed with cancer, I would take anti parasite medicine for a couple of weeks before committing to the knife or radiation. 

Funny thing, you never see any reports on live stock being treated for cancer or mass  cancer cases in the agriculture livestock industry.  Why, the animals are fed anti parasite drugs in their feeding process.  When you do see cancer in animals/pet, you will find it is because the owners do not treat the animal for parasites.  Remember what the Vet told you?  Treat your pet 2 times a year for parasites.  How ironic is this? 

The Crazy Cat Lady Syndrome is real.  Many studies have been conducted on how parasites affect rats/mice.  Making them act invincible to preditor's.  Cats and dogs carry heavy loads of parasites and pass them on to their care  takers.  Causing symptoms of food allergies, gastro intestinal issues, what appears to be acne and lung problems.  It took 25 plus years for me to become so ill I was heading towards the grave yard. Decades of my life were live around the symptoms of the parasites in my body.  Doctors and toilets.  I grew up and lived in the dirt, on a farm, in the creek, river, woods, barn, third world travel, had poor medical care as a child and had know clue that many of my medical issues were directly related to the parasites in my body.

Or my favorite. "Doctors cut into the patient and the cancer spread through out their body."  The parasites were released from the egg sack and allowed to set up home some where else.

When I did start seeking help after the tip from the Old Farmer and the Veterinarian, I was told that parasites in humans are never considered, not seen or treated in U.S. medicine.  Further research revealed that Doctors are not trained in diagnosing or treating parasites. I ended up self medicating.  Within 6 months I was significantly healthier.  But now old.  The Data the U.S. CDC has on Their web site regarding parasites is very scary.  The testing procedures are less than 3% accurate.  Parasites are an un acknowledge epidemic in the U.S. 



Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on January 11, 2020, 04:40:12 PM
   A life threatening disease bring a clarity of vision, easy to see the bullshit...Hints about doctors not wanting to cure patients and overlooked medical miracles and now parasites causing cancer..Like others here with a lethal cancer, I have talked dozens of times to oncologists and RN's and I have no doubt these people are dead f***ing serious about curing cancer.They have dedicated their lives to helping the sick and dying. The dog dewormer is not unknown to oncologists and there are some who have seen good results..How many is that,100? 1000?  but, we all get to believe what we want............... .
 
 
Title: Re: More Cancer, acid reflux
Post by: nobleswood on January 11, 2020, 10:43:02 PM
RER,

Sorry to hear/read about what you've been through.

Keep fighting; the doctors can & will do the best they can, but your mental strength is a major force in this fight.

Wishing you a continued good recovery.  :thumb:
Title: Re: More Cancer, acid reflux
Post by: Mr Pootle on January 13, 2020, 09:28:12 AM
I'm both delighted by your news, and encouraged by it.
Title: Re: More Cancer, acid reflux
Post by: Petrus Rocks on January 13, 2020, 07:54:42 PM
My buddy Tony has a stiff upper lip ( due to his British bike habit)!  He has road to cover yet of but still comes over to bend my ear and help work on the bikes.  I know he appreciates this forums' sympathies and comment.  I hope to post some of his help with my Guzzi when it's her turn on the operating table.  It's thanks to him I got my beastie.  :thumb:
Title: Re: More Cancer, acid reflux
Post by: breva750 on January 26, 2020, 11:34:42 PM
I read the read the following 2 statements in this thread with great alarm:

"I will throw this out there, parasites.  ... Cancer is caused by parasites.  Parasites are called cancer."
and
"When I did start seeking help after the tip from the Old Farmer and the Veterinarian..."

Rocker59 replied to the first statement correctly: "Cancer is not a parasite.  Cancer is abnormal cell growth.  One's own cells."

My reply to the second statement is: please don't take any medical advice for yourself from an "old farmer" or a "veterinarian"
Go to your primary care physician.



Cancer is uncontrolled cell growth.
A parasite is an organism that lives in another organism, called the host, and often harms it. It depends on its host for survival. Without a host, a parasite cannot live, grow and multiply.

Note: Among protozoan parasites, Toxoplasma gondii, Cryptosporidium parvum, Trichomonas vaginalis and Theileria may be a cause of cancer cells. Plasmodium falciparum may be an indirect cause of cancer. Tapeworms such as Echinococcus granulosus and Taenia solium may directly or indirectly cause cancer.

If you really think you have a parasitic disease, let your PCP know your concerns.... there are many precise tests which your PCP can use to check for this.
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on February 24, 2020, 07:55:58 AM
This story appears to have a happy ending. I just got home froma 10 hour surgery to rebuild my esophagus and remove affected lymph nodes.12 days in intensive care.Scans and biopsies showed no cancer ANYWHERE. The chemo and radiation did its job.. 6 months of this has beaten the shit out me but I will recover. I have no idea what the future will be but for now I will take one day at a time.
Thanks for all the well wishes!
Title: Re: More Cancer, acid reflux
Post by: oldbike54 on February 24, 2020, 08:18:19 AM
 Good news Tony  :thumb:

 Dusty
Title: Re: More Cancer, acid reflux
Post by: 80CX100 on February 24, 2020, 08:31:30 AM
Hey Tony,    That sounds like a Rough road you've been down; glad to hear that you're on a better one, hope that healing and energy gets you up wrenching and riding soon.

     Thanks for sharing the good news

      Kelly
Title: Re: More Cancer, acid reflux
Post by: trippah on February 24, 2020, 08:51:03 AM
Yeeeeaaahhhhhhhh!!!!!!!!!
Title: Re: More Cancer, acid reflux
Post by: Ncdan on February 24, 2020, 08:51:56 AM
Hey Tony, I admire your level headed approach to your misfortune in getting this terrible disease. I, as well as most of us here have lost friends and loved ones to cancer, in fact I have a lifelong friend now getting prepped to start a fight for his life with throat cancer. You are definitely right about the caregivers related to this devastating disease, they are 100% invested the treating and curing cancer! I will continue to keep you in my thoughts and prayers my guzzi forum friend 👍
Title: Re: More Cancer, acid reflux
Post by: Mr Pootle on February 24, 2020, 01:31:07 PM
This story appears to have a happy ending. I just got home froma 10 hour surgery to rebuild my esophagus and remove affected lymph nodes.12 days in intensive care.Scans and biopsies showed no cancer ANYWHERE. The chemo and radiation did its job.. 6 months of this has beaten the shit out me but I will recover. I have no idea what the future will be but for now I will take one day at a time.
Thanks for all the well wishes!
Terrific news
Title: Re: More Cancer, acid reflux
Post by: Muzz on February 24, 2020, 01:38:01 PM
Good news happenings are always good to hear Tony.  Long may the "all clears" carry on. :thumb:
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on February 24, 2020, 01:40:07 PM
Relaxing at home today with a little help from  Oxycodene.. device behind me feeds nutrients directly into my small intestine until I can eat real food...The other device is a motorcycle :wink:

           (https://i.imgur.com/aJWjtCmh.jpg)
Title: Re: More Cancer, acid reflux
Post by: Lannis on February 24, 2020, 03:28:38 PM
That's steel-cut oats in that bag, I'll guarantee it!    :azn:   Keep going!

Lannis
Title: Re: More Cancer, acid reflux
Post by: pebra on February 24, 2020, 03:31:20 PM
 :thumb: :thumb: :thumb: :thumb: :thumb: :thumb: :thumb:
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on February 24, 2020, 04:36:47 PM
That's steel-cut oats in that bag, I'll guarantee it!    :azn:   Keep going!

Lannis
   looks like the same long list of stuff  in protein drinks..a day,s supply is 1500 calories. I do drink coffee,,tea ,ice cream and jello. By next week I can eat eggs,some ceral......No raw veggies or meat for about a month...I weighed 173 pounds in August when the nightmare started......I weigh the same right now.
Title: Re: More Cancer, acid reflux
Post by: Gliderjohn on February 24, 2020, 05:34:39 PM
 :thumb:
GliderJohn
Title: Re: More Cancer, acid reflux
Post by: PeteS on February 24, 2020, 06:05:33 PM
Great news Rough! Jimmy at the BBC said you were looking good. :thumb:

Pete
Title: Re: More Cancer, acid reflux
Post by: Nick on February 24, 2020, 06:09:27 PM
Great news!!  :thumb:
Title: Re: More Cancer, acid reflux
Post by: davedel44 on February 24, 2020, 07:10:03 PM
 :thumb: :thumb: :thumb:

Dave
Galveston
Title: Re: More Cancer, acid reflux
Post by: MotoChuck250 on February 24, 2020, 09:23:01 PM
This story appears to have a happy ending. I just got home froma 10 hour surgery to rebuild my esophagus and remove affected lymph nodes.12 days in intensive care.Scans and biopsies showed no cancer ANYWHERE. The chemo and radiation did its job.. 6 months of this has beaten the shit out me but I will recover. I have no idea what the future will be but for now I will take one day at a time.
Thanks for all the well wishes!

Glad to hear this.  IIRC I spent about 11 days in the hospital after my esophagectomy.   Keep up your activity levels and exercise as much as  you can. 

A few points that the doctors probably didn't tell you and they may not in fact know much about.
1. You will probably not be able to eat as large meals as you did before.  You will likely have to eat smaller meals and more often.
2.. If they removed your lower esophageal sphincter. You will get some reflux when lying on your left side as the stomach acid sloshes up towards your upper sphincter and your throat.
3. You will probably want to stop eating about 3-4 hours before bed time so that your stomach empties out before going to bed. Especially avoid dairy products late in the day.

I am currently almost 4 years out from my surgery.  My oncologist tells me after another year they will throw me back into the general population. 

Here's hoping for good things for your recovery.  :thumb:
Title: Re: More Cancer, acid reflux
Post by: nobleswood on February 25, 2020, 05:15:15 AM
Great news  :thumb:
Title: Re: More Cancer, acid reflux
Post by: greer on February 25, 2020, 06:25:30 AM
Wonderful news! 

Sarah 
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on February 25, 2020, 07:01:02 AM
Glad to hear this.  IIRC I spent about 11 days in the hospital after my esophagectomy.   Keep up your activity levels and exercise as much as  you can. 

A few points that the doctors probably didn't tell you and they may not in fact know much about.
1. You will probably not be able to eat as large meals as you did before.  You will likely have to eat smaller meals and more often.
2.. If they removed your lower esophageal sphincter. You will get some reflux when lying on your left side as the stomach acid sloshes up towards your upper sphincter and your throat.
3. You will probably want to stop eating about 3-4 hours before bed time so that your stomach empties out before going to bed. Especially avoid dairy products late in the day.

I am currently almost 4 years out from my surgery.  My oncologist tells me after another year they will throw me back into the general population. 

Here's hoping for good things for your recovery.  :thumb:
Yes,lower 1/3 was removed...the docs and nurses have been good about info and foiiow through. I get home visits and so on
  The day after surgery I was doing great.The night nurse was doing my vital signs when suddenly I  could not breathe. I WENT INTO FULL PANIC ATTACK. In seconds a team of medical personal was on me but they couldn't get air into my lungs unti injected with a paralyzing drug

 ..So there I was somewhat aware but unable to react. I figured it w as the end,death. I remember a young doctor holding my hands in hers saying all will be ok. I spent three days on a ventilator before  I could breathe on my own again.
  Be careful with the wording on a DNR..the had to call my wife for permission because of my DNR.


Title: Re: More Cancer, acid reflux
Post by: chuck peterson on February 25, 2020, 07:32:02 AM
ooooooohhhhh synthetic food in a can...my favorite. I lived w that f$&@;!$ pump machine for two years at 2000 calories a night. Osmolite was my brand, what's yours?

Carry on.  :bow: I know you have the Guzzi Guts to do so.

Good to hear your with us.  :bike-037:
Title: Re: More Cancer, acid reflux
Post by: Rough Edge racing on February 25, 2020, 07:55:04 AM
ooooooohhhhh synthetic food in a can...my favorite. I lived w that f$&@;!$ pump machine for two years at 2000 calories a night. Osmolite was my brand, what's yours?

Carry on.  :bow: I know you have the Guzzi Guts to do so.

Good to hear your with us.  :bike-037:
Osmolite brand.......it's injected directly into my small intestine so I can't taste it....
Title: Re: More Cancer, acid reflux
Post by: drbone641 on February 25, 2020, 09:16:09 AM
Tony, awesome news coming out of a tough or Rough, fight. Good luck for many future rides.
https://www.youtube.com/watch?v=KSRs2DRkYgM
Title: Re: More Cancer, acid reflux
Post by: Markcarovilli on February 25, 2020, 09:18:31 AM
from your posts and pic you look like all is going well.  Glad for you and keep at it....

Mark