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General Category => General Discussion => Topic started by: ChuckH on March 02, 2016, 03:47:43 PM
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Well, my A-Fib has been acting up more frequently and erratically lately so my heart guy has decided to put me on a 48-Hour stint with a Halter Monitor. I get hooked up mid-this month and at least it's better (shorter) than the last time, that was a 30 day stint about 4 years ago.
They need to figure out what's causing these problems so it can get fixed. I can not go on the road on the bike the way things are at the present time.
More later. Until then, ride safe out there and have fun.
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Well, my A-Fib has been acting up more frequently and erratically lately so my heart guy has decided to put me on a 48-Hour stint with a Halter Monitor. I get hooked up mid-this month and at least it's better (shorter) than the last time, that was a 30 day stint about 4 years ago.
They need to figure out what's causing these problems so it can get fixed. I can not go on the road on the bike the way things are at the present time.
More later. Until then, ride safe out there and have fun.
Good luck with that, Chuck..
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Izzat a halter like a horse wears? So they can monitor your motorcycling usage?
That's really tyrannicle, You have a domineering doctor. I hope she is at least sexy.
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Izzat a halter like a horse wears?....
No, this is a series of sticky things in several places on your upper body that are connected by wires to a little black box that I wear by my waist. The little sticky things monitor the functioning of the heart and send signals to the black box. After the 48 continuous hours, I take everything off and the doctors read the signals to determine what is happening when my heart goes into it's fluttering events.
Hopefully, they will find something that can be remedied without great difficulty. If so, I'll be able to get back on the road again.
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Good luck with that, Chuck..
Thanks Chuck. This is a real bummer.
I've lived with this condition for the last 4+ years with the heart fluttering events happening on a 3 to 5 week basis. That was OK and I could tolerate it. Now I'm having these events every couple of days or so and there is no predictability at all with them. It needs to be fixed.
The other Chuck
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Hi chuck , I had a similar issue years ago , thought I was having palpitations. Tried to ignore them for a couple weeks until finally it felt like I was about to have the big one. Went to the doc and he sent me to the er. They did a couple tests and then sent me home wired up with the Holter monitor. I had to push the record button whenever I felt the abnormal beats. Turned out they were pvc's ( premature ventricular contractions) that are perfectly normal. I guess that is a moment when your heart skips a beat normally and it allows for the heart to repair itself. Somehow they can get into your consciousness and become ever more noticeable , the more you focus on them the worse they get. It took mine a couple months to subside once I was assured there was nothing seriously wrong. Hope you get straightened out and back out on the road pronto. dave
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Thanks Dave,
So far mine have been in the upper two atrial cavities. It's been a recirculation of the pumped blood instead of pumping it out into the body. I have been on a blood thinner to prevent clotting during this recirculation process. As I said, they haven't happened all that often, so I could tolerate the event and then go about normal operation the balance of the time. Now, however, they're occurring much more frequently and I have no warning of when one might occur. It's a condition that needs to be dealt with.
Thanks once again for your thoughts.
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Well dangit Chuck , please do get better , we still have things to do together :thumb:
Dusty
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I have had two cardio versions (shock your heart back into rhythm) first time didn't work second one is going on two years in April with Afib under control, of course two years is at the long end of it not coming back. I'm onr of those they don't know why I'm in fairly good shape, no heart issues, low weight, just one of those things.
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I had a quad bypass in 2002 and shortly thereafter, the A-fib started. It came and it went for years until I had a major event with Tachy-Brady syndrome and had to be paddled back six times in around 40 minutes while in the ER. I wound up with a pacemaker but I still get A-fib.
I hope your doctors can get to the root cause of your particular source for the A-fib because as you know, it's an unpleasant thing to experience; especially when you have repeated bouts on a routine basis.
Good luck with getting it resolved quickly.
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As with everything else, heart medicine is specialized. Go see an electrophysiologist . Depending on your exact condition, you may be eligible for a pulmonary vein ablation procedure. I've had it done twice and the second time seemed to correct my condition.
Good luck.
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Get better, Chuck. Our motorcycling community needs you out there (here?).
Best,
Carlo
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Thanks for the good words and thoughts guys. We'll see what they find out from my time on the Monitor. My heart guy is at St Francis in Indy, one of the very best in the care of hearts in the country.
My only hope is they find the problem and get it fixed in time for me to make The National in John Day. Those three rallies (OR, WA, ID) have been in my long range plans since they were announced.
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Hopefully they get it figured out and dealt with quickly!
Jan has been dealing with tachycardia for some time, getting an attack every few years. Since she began chemo, it had been happening quite often. (She went to the hospital 4 times in about 2 months.) She went in and they zapped it, kept her overnight and sent her home. It has been ok for a few weeks now, so it seems they dealt with it. Not sure exactly what they did but it worked and no pacemaker.
Take care.
John Henry
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Well, my A-Fib has been acting up more frequently and erratically lately so my heart guy has decided to put me on a 48-Hour stint with a Halter Monitor. I get hooked up mid-this month and at least it's better (shorter) than the last time, that was a 30 day stint about 4 years ago.
They need to figure out what's causing these problems so it can get fixed. I can not go on the road on the bike the way things are at the present time.
More later. Until then, ride safe out there and have fun.
Get a Cryoablation, see a electrocardiologist, stay away from cardiologists (they just give you drugs). A-fib gets worse over time, once you go into permanent A-fib that lasts for a year or longer, there is nothing that will fix it. Had a Cryoablation November 2014 and so far I'm as good as new.
Are you under the age of 70 and not obese and otherwise in good shape?
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Thanks Chuck. This is a real bummer.
I've lived with this condition for the last 4+ years with the heart fluttering events happening on a 3 to 5 week basis. That was OK and I could tolerate it. Now I'm having these events every couple of days or so and there is no predictability at all with them. It needs to be fixed.
The other Chuck
Do you have atrial flutter or atrial fibrillation? Atrial flutter is a easy fix, atrial fibrillation not so much.
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Are you under the age of 70 and not obese and otherwise in good shape?
:smiley: :smiley: You're not from around here, are ya?
He qualifies on two of those..
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:smiley: :smiley: You're not from around here, are ya?
He qualifies on two of those..
Where is here? He doesn't reveal his location, nor do you, what are you hiding?
Let me put it to you another way, if he qualifies for two of these, he may not be a candidate for a ablation.
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All the best Chuck. I'm a little squeamish when it comes to the ticker...
Spud
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Do you have atrial flutter or atrial fibrillation? Atrial flutter is a easy fix, atrial fibrillation not so much.
Cool Running,
Thanks for your comments. The original diagnosis was that mine is the fibrillation version. Normally, during an episode, my heart will be in that mode for a couple of hours with the blood being recirculated in the upper cavities and not pumped out through the body. After that, things tend to moderate a bit but I'm still low in energy for the better part of a day.
With these recent changes, the feelings are about the same. The problem is they are occurring much more frequently and are, therefore, very unpredictable. I'm certain there is a reason and a solution. I just have to let the doctors figure out what has to happen.
As for me and my location -- we're located a bit south of Indy and, unfortunately, I'm moving on 83 years of age this August. I wish that wasn't so but it just turned out that way.
Ride safe.
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Where is here? He doesn't reveal his location, nor do you, what are you hiding?
Let me put it to you another way, if he qualifies for two of these, he may not be a candidate for a ablation.
Uhh, look at the bottom of every post I make..
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Where is here? He doesn't reveal his location, nor do you, what are you hiding?
Let me put it to you another way, if he qualifies for two of these, he may not be a candidate for a ablation.
Uhh, look at the bottom of every post I make..
Yeah , what are you two Chucks hiding ? :laugh: Seriously , accusing folks of hiding stuff always annoys and at the same time amuses me :undecided:
Dusty
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Get well. Just don't let Roper do your diagnostics/programming. You will develope a rubber chicken fetish.... :laugh:
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At any rate, Chuck knows what he's doing and is just explaining why we may not see him at some early rallies. Since he's changed to that Beemer, though.. I don't have to worry about him taking the oldest rider trophy any more. :evil: :smiley:
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Get well. Just don't let Roper do your diagnostics/programming. You will develope a rubber chicken fetish.... :laugh:
Hmmm, I wondered how my avatar got that way..
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Cool Running,
Thanks for your comments. The original diagnosis was that mine is the fibrillation version. Normally, during an episode, my heart will be in that mode for a couple of hours with the blood being recirculated in the upper cavities and not pumped out through the body. After that, things tend to moderate a bit but I'm still low in energy for the better part of a day.
With these recent changes, the feelings are about the same. The problem is they are occurring much more frequently and are, therefore, very unpredictable. I'm certain there is a reason and a solution. I just have to let the doctors figure out what has to happen.
As for me and my location -- we're located a bit south of Indy and, unfortunately, I'm moving on 83 years of age this August. I wish that wasn't so but it just turned out that way.
Ride safe.
Due to your age about the best advice I can give you is get a "pill in pocket" of Flecainide. When you get a episode, go to the ER and while you are waiting take a double dose, if you have a bad reaction, you will be admitted right away, otherwise it may knock out the arrhythmia.
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Did someone say rubber chicken..........
ZZ
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I met ChuckH at the National in Canada. You'd never guess he is 83 as he looks to be the epitome of healt. Not like an overweight, cigar smoking, wind sucking cardiovascular cripple that has to look in the dictionary to spell healthy lifestyle.
The best to you,
Tex
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I met ChuckH at the National in Canada. You'd never guess he is 83 as he looks to be the epitome of healt. Not like an overweight, cigar smoking, wind sucking cardiovascular cripple that has to look in the dictionary to spell healthy lifestyle.
The best to you,
Tex
As long as we are telling "we met at" stories , Chuck was at David Welch's Arkie gig summer of 2014 . No finer gentleman nor bull moose motorbike rider have I had the pleasure to encounter :bow:
Dusty
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Due to your age about the best advice I can give you is get a "pill in pocket" of Flecainide. When you get a episode, go to the ER and while you are waiting take a double dose, if you have a bad reaction, you will be admitted right away, otherwise it may knock out the arrhythmia.
Cool, don't you think you should tell us your background? Are you a medical professional, work in one of the many pacemaker companies in your area or just an informed patient?
I am not a medical professional but have worked 30 years in Cardiology Research with an emphasis on electro cardiology and have built many prototype devices for heart mapping and ablation. In no way would I recommend treatment. If Chuck has a competent Cardiologist he should direct him to the best treatment whether it be drugs or intervention.
Chuck, If you Cardiologist thought this was an acute event you would have already had your Holter done. Good luck with your tests.
Pete
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....Since he's changed to that Beemer, though.. I don't have to worry about him taking the oldest rider trophy any more....
Yes, I pretty much have a wall full of "Oldest Fart Who Rode to the Rally" plaques now. Other than decoration on the garage wall, the most useable is the coffee cup from the 2015 MN Rally in Grand Marais, use it every day. The plaque from the largest event is from the 2015 Beemer Falling Leaf Rally in Potosi, MO, about 700 riders there for that event. I rode the R Bike to get some experience with it.
Chuck, it will be either up to you or Randy Petersen from northern Michigan to be the oldest at the Guzzi events. Have fun.
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Cool, don't you think you should tell us your background? Are you a medical professional, work in one of the many pacemaker companies in your area or just an informed patient?
I am not a medical professional but have worked 30 years in Cardiology Research with an emphasis on electro cardiology and have built many prototype devices for heart mapping and ablation. In no way would I recommend treatment. If Chuck has a competent Cardiologist he should direct him to the best treatment whether it be drugs or intervention.
Chuck, If you Cardiologist thought this was an acute event you would have already had your Holter done. Good luck with your tests.
Pete
Aw c'mon Pete , most of us aren't lawyers , doesn't stop us from doling out legal advice :evil: I do agree , making long distance diagnoses W/O the benefit of knowing the patient's specifics is dangerous , don't think Chuck was listening anyway . Now , anyone want to take a whack at shrinking my head via the internet ? :grin:
Dusty
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Cool, don't you think you should tell us your background? Are you a medical professional, work in one of the many pacemaker companies in your area or just an informed patient?
I am not a medical professional but have worked 30 years in Cardiology Research with an emphasis on electro cardiology and have built many prototype devices for heart mapping and ablation. In no way would I recommend treatment. If Chuck has a competent Cardiologist he should direct him to the best treatment whether it be drugs or intervention.
Chuck, If you Cardiologist thought this was an acute event you would have already had your Holter done. Good luck with your tests.
Pete
Abstract
Atrial fibrillation (AF) is the most common arrhythmia in clinical practise and its prevalence is increasing. Over the last 25 years, flecainide has been used extensively worldwide, and its capacity to reduce AF symptoms and provide long-term restoration of sinus rhythm (SR) has been well documented. The increased mortality seen in patients treated with flecainide in the Cardiac Arrhythmia Suppression Trial (CAST) study, published in 1991, still deters many clinicians from using flecainide, denying many new AF patients a valuable treatment option. There is now a body of evidence that clearly demonstrates that flecainide has a favourable safety profile in AF patients without significant left ventricular disease or coronary heart disease.
http://www.medscape.com/viewarticle/736743
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....Chuck, If you Cardiologist thought this was an acute event you would have already had your Holter done. Good luck with your tests. Pete
Pete, Thanks for your comments. The St Francis Heart Center is top notch and my heart guy, one of their doctors has been doing the A-Fib thing for 25 years. We meet annually and have blood work and EKG every six months. When I called yesterday telling his nurse that the characteristics of my episodes had changed (and I thought for the worse), the first thing recommended was the 48-Hour Holter Monitor connection. After that it's read the data and have a meeting. I'll have blood work and an EKG prior to that meeting. Then, hopefully, there will be some changes to improve this situation.
My heart guy doesn't like my "hobby of choice", (ie; motorcycle riding), says it's dangerous but he is very good at his profession.
Ride safe guys. Thanks for your comments and concern.
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Pete, Thanks for your comments. The St Francis Heart Center is top notch and my heart guy, one of their doctors has been doing the A-Fib thing for 25 years. We meet annually and have blood work and EKG every six months. When I called yesterday telling his nurse that the characteristics of my episodes had changed (and I thought for the worse), the first thing recommended was the 48-Hour Holter Monitor connection. After that it's read the data and have a meeting. I'll have blood work and an EKG prior to that meeting. Then, hopefully, there will be some changes to improve this situation.
My heart guy doesn't like my "hobby of choice", (ie; motorcycle riding), says it's dangerous but he is very good at his profession.
Ride safe guys. Thanks for your comments and concern.
Have you been checked for sleep apnea?
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Abstract
Atrial fibrillation (AF) is the most common arrhythmia in clinical practise and its prevalence is increasing. Over the last 25 years, flecainide has been used extensively worldwide, and its capacity to reduce AF symptoms and provide long-term restoration of sinus rhythm (SR) has been well documented. The increased mortality seen in patients treated with flecainide in the Cardiac Arrhythmia Suppression Trial (CAST) study, published in 1991, still deters many clinicians from using flecainide, denying many new AF patients a valuable treatment option. There is now a body of evidence that clearly demonstrates that flecainide has a favourable safety profile in AF patients without significant left ventricular disease or coronary heart disease.
http://www.medscape.com/viewarticle/736743
Soooo, you read it on the internet ? Well hell , I stayed at a Holiday Inn express last night ...
Dusty
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Soooo, you read it on the internet ? Well hell , I stayed at a Holiday Inn express last night ...
Dusty
Cheap bastard. :evil:
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Cheap bastard. :evil:
Yep , but smart enough to not make long distance diagnoses re someone's life .
Duisty
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Yep , but smart enough to not make long distance diagnoses re someone's life .
Duisty
Don't post stuff like this in the first place (OP).
Just because you have ZERO experience with A-fib, you have no idea what it can be like. Cleary (OP) is very symptomatic with his attacks, others don't know when they are not in sinus rhythm, it dosn't really bother them. Anyways, no more comments from me on the subject.
~ goodbye. :boozing:
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Aw c'mon Pete , most of us aren't lawyers , doesn't stop us from doling out legal advice :evil: I do agree , making long distance diagnoses W/O the benefit of knowing the patient's specifics is dangerous , don't think Chuck was listening anyway . Now , anyone want to take a whack at shrinking my head via the internet ? :grin:
Dusty
Ok, I'll bite but first and foremost, I need to know if it's a warranty issue, have the recalls been done and are you willing to pay for it out of pocket? :boozing: :laugh:
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Ok, I'll bite but first and foremost, I need to know if it's a warranty issue, have the recalls been done and are you willing to pay for it out of pocket? :boozing: :laugh:
No , the warranty ran out in 1995 , must have missed any recalls , and PAY for it , HAH ! Thought head shrinking was paid for by my generous WG comp package :shocked: :huh:
Dusty
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Don't post stuff like this in the first place (OP).
Just because you have ZERO experience with A-fib, you have no idea what it can be like. Cleary (OP) is very symptomatic with his attacks, others don't know when they are not in sinus rhythm, it dosn't really bother them. Anyways, no more comments from me on the subject.
~ goodbye. :boozing:
Chuck wasn't asking for advice , he was merely explaining to the group why he might not attend some of our events , instead of sending out individual messages . He has the privilege to do so .
Dusty
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This used to be a pleasant place to hang out.. with courteous posters.
<grumbling and shuffling off>
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No , the warranty ran out in 1995 , must have missed any recalls , and PAY for it , HAH ! Thought head shrinking was paid for by my generous WG comp package :shocked: :huh:
Dusty
Alright, just this once.
You are afflicted with ITSA. Its pronounces eetza. It is somewhat rare and as with some afflictions, can attack when you least expect it; healthy one day and the next, in some strange contortion involving the hands, feet and neck.
For decades, various remedies have been sought and some tried. Mixtures involved things like Saki, Umph and even Uki. None really worked and they could be quite costly to try.
Physical symptoms aside, the mental issues are the most debilitating. Speechlessness, an inability to see clearly through blue smoke and a loss or motor control in the left hand but not the right are common.
It was an unknown practitioner who finally diagnosed the affliction and also named it properly so that others could contribute to the treatments. These treatments could be very expensive and had mixed results often requiring the patient to seek variations of the treatment over and over again.
There is no permanent cure, only symptom relief.
You have...
GuzzITSA syndrome.
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...so my heart guy has decided to put me on a 48-Hour stint with a Halter Monitor. I get hooked up mid-this month and at least it's better (shorter) than the last time, that was a 30 day stint about 4 years ago.
Update time -- Well, nothing unusual came out of the 48 Hours with the Monitor. Disgustingly healthy in that time period was the conclusion. So, this Friday I'll be fitted with another 30 day Monitor with the expectation that something (hopefully) will happen and it will be recorded.
Also, I'm scheduled for an Echo-Gram of the heart in operation, during a stress test. This ought to be interesting. I had one, without the stress, about three years ago but everything showed normal. Now, maybe something has changed enough and they will find it.
So, for the time being, life as normal; cut the grass, ride the motorcycle, etc, etc.
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I know how you feel. .disgustingly healthy. . After a while, you wish they would hurry up and find it.
Hang in there, and all the best from us.